Day 21 – Zonked

Déjà vu.
Last night was worse than the night before. I’m guessing I got about 3 hours sleep total—and not consecutively, either.
I’ve never been keen on the concept of taking pills, but I’ve set up and appointment with my doctor on Friday to discuss the cancer, surgeon selection, and my inability to get a good night’s sleep. It’s taking a toll and I know that I can’t go into surgery as physically drained as I am right now. Maybe a sleeping pill will turn off the thought train screaming through my brain for 6-8 hours so I can be well rested and more functional.
Speaking of surgery, another coworker was diagnosed with prostate cancer about the same time that I was (maybe a week or two earlier), and I heard through the grapevine that his surgery is scheduled for 9 December. I don’t read anything into that without knowing the status of his cancer.
I picked up my medical version of Liquid-Plumr ™ to clean out the ol’ pipes for the colonoscopy. I just can’t wait till Sunday!! (That’s sarcasm just in case you didn’t pick up on that.)
I also picked up a copy of my bone scan on CD-ROM. It’s pretty cool. I can plug it into my optical drive and check out my skeleton from head to toe. Isn’t technology wonderful?? Of course, I have absolutely no idea of what to look for, but it is fun to look at. The surgeon in Indy wanted me to bring it along for the appointment.
So when this load of laundry is done, I’m going to crawl into bed and try one more time.

Day 20 – Forms

Steamrolled. That’s a good word to describe me right now.
Last night was another with me staring at the clock from about 3:15 AM on. Of course, the first thing that pops into my head is questions that I need to be asking the surgeons. Good thing I keep a pen and pad on the nightstand.
The rest of the day went pretty well, but when I got home, I was drained of energy and had a headache the size of Montana. After a quick dinner, I crawled into bed for about 45 minutes, being careful to just relax and not fall completely asleep. If I did, I’d be up at 2 AM tonight.
I did contact the insurance company to make sure that I’m covered to see both surgeons, and I am. That was a good thing to hear.
I also spent half an hour filling out forms for the surgeon’s office in Cincinnati. Interestingly, the papers are identical to the ones that I completed for the biopsy procedure (both doctors operate out of the same office). Hello left hand. Meet right hand. I’m supposed to get another pile of paperwork from the second surgeon in the mail. Yippee.
Last night, I took a serious look at the instructions for the colonoscopy on Monday. There are some serious dietary restraints for the last few days before the procedure, including no solid food for 24 hours before the procedure. Ugh. If you think I’m a grump now…. Steer clear on Sunday!!
So I’m out of energy for tonight.

Day 19 – Reality Check

Monday. Back to reality.

And I’m not talking the reality of being at work after being off for four days. I’m talking the anxious thoughts of cancer came flooding back this morning for some reason. Most centered around this whole ordeal of selecting the guy who’s going to poke holes in my pelvic region, root around for the bad ol’ prostate, snip it out of me, and sew everything back together, hopefully, with no leaks or no spare parts left over. “Hmmm… Where does this go??”

I feel like Indiana Jones in The Last Crusade: “Choose wisely.” Pick the right chalice, and I live happily ever after; pick the wrong one, and I’m condemned to a hell of peeing in my diapers and never getting a woody again. (Sorry, at some point the conversation had to go down that path—it’s part of my reality.)

A bit dramatic? Perhaps. But that’s the way my mind is operating at the moment.

I know that I need to do this, and I know the chances of the hellish outcome are quite small, and most important, I know that having the surgery will give me the best chance of long term survival, so all of this should be a no-brainer.

I guess part of this anxiety may be realizing that selecting a surgeon and scheduling a surgery date takes this whole adventure one step closer to the very real. But, as a coworker pointed out at lunch today, it also takes me one step closer to being cancer-free. I have to keep that perspective in mind and let it be the driving force of my thoughts.

She understands, as she’s a cancer survivor herself.

It was really helpful to talk with her today and she helped bring me back to thinking more positively and more logically about the entire thing.

Even amidst all my angst this morning, I did manage to call the second surgeon in Indianapolis and was able to schedule an appointment to see him (Monday, 13 December). Now, I just need to get all of my records sent up to him before then. Somehow, I have a feeling that that won’t be the easiest of tasks.

So the forecast for the next two weeks includes a wintry mix of distraction, emotion, and anticipation. What’s next:

Monday, 6 December – Colonoscopy
Thursday, 9 December – Cincinnati Surgeon Appointment
Monday, 13 December – Indianapolis Surgeon Appointment
Tuesday, 14 December – Toss executive decision making aid (Heads = Cincinnati; Tails = Indianapolis)

Day 18 – Nothing

Yep. That’s it. I got nothing.

That’s the kind of day it was. Read a book on photography in the morning, played with the photos from Thanksgiving, shopped a little in the afternoon, and relaxed in the evening.

That was my excitement for the day.

Oh. And we’ve exceeded 500 views on this blog. Amazing. Most are from the U.S.; 8 views from France; 3 from Germany; 1 from Denmark; and 1 from Russia. I can explain the 8 from France and 1 from Denmark (traveling coworker) and the 3 from Germany (relatives), but the one from Russia has me stumped. An errant mouse click, perhaps?

Day 17 – Lost Opportunity

“It’s been a quiet week in Lake Wobegon…”

Those of you who listen to humorist Garrison Keillor’s two hour live radio variety show on NPR every Saturday night are familiar with this famous tag line of his. It’s a show that a college buddy introduced me to in the late 1970’s, and, when I remember, will tune in on Saturday nights as I’m doing things around the house.

This week’s episode was broadcast from Cincinnati’s Music Hall, and I had completely forgotten about it being here this weekend. To me, seeing one of his shows in person would be one of those “bucket list” kind of events. Another would have been seeing Harry Carey lead the Cubs’ bleacher bums in “Take Me Out to the Ball Game” during the 7th inning stretch at Wrigley Field. But Harry Carey is long gone, and Garrison—like all of us—is advancing in years and has a finite number of performances left in him.

Having cancer does—as cliché as it seems—force you to reexamine your priorities. Granted, I fully plan on beating this and living long after the demon cancer is gone, but it’s also time that I start living a little more, doing the things that I’ve been reluctant to do or have just simply forgotten to do. Like sitting in Music Hall watching Garrison Keillor’s show.

As far as the nuts and bolts of today are concerned, it was a good day. I went to Indianapolis to do a little Christmas shopping and was amazed that the malls were relatively empty. I guess everyone was out yesterday on “Black Friday,” and they stayed home today. I’d like to say that I came home with a trunk full of gifts, but I didn’t. I did, however, come home with a list of things for myself… J Bad. I know…

I’ll have to admit that this four-day weekend has been a good respite from the last three weeks, but I think that I’ll need to get back into the select-a-surgeon mode, writing out questions to ask the surgeon(s) once I meet them in my appointment(s).

Finally, I had a conversation with a friend who stopped by my sister’s house Thanksgiving night about my upcoming colonoscopy. (Yes, I know… A fine topic after a BIG Thanksgiving dinner…) He’s been putting his off for years because he’s terrified of the idea of—BLUNT CONCEPT WARNING—something going up his butt. Instead of being terrified of that, he should be terrified of not knowing whether he has cancer in him.

So guys, all I can say is, GET OVER IT. With a colonoscopy, at least you’re partially knocked out and won’t feel a thing. And with the ol’ DRE—and the fifteen or so seconds of discomfort of having a finger poke around your rectum—it’s what discovered my tumor and led to further testing, diagnosis, and treatment.

Yes, I know it’s one of those, “If you can’t stand the answer, don’t ask the question” questions, but it can save your life. I’m hoping that my early diagnosis and treatment will save my life so I can see as many goofy concerts or radio shows as I want.

Day 16 – Recovery

Another short post.  It was a great Thanksgiving with the family and friends.  Of course, today was spent picking over the leftover food and just recovering from the day before.  A relaxing day around the house with family.

All in all, they were two good, worry-free days.  While we never shied away from the topic of cancer, we didn’t dwell on it when we did talk about it, and nor did I even think about the surgeon selection process.  That can wait until Monday.

That’s it for this post.

Day 15 – Stuffed

This will be a short post.  A great Thanksgiving Day with my sister and her family and friends.  Of course, all of us ate far more than we should have.  But is was all so good.  Leftovers in the morning, afternoon, and evening tomorrow!

Day 14 – Thankful

It’s hard to believe that it’s only been two weeks since I learned that I have cancer—it seems as though it’s been two years already. It just feels as though that day was a long, long time ago, but it really wasn’t.
That first Saturday—just a little more than 48 hours into this adventure—a friend asked something along the lines of “What are you learning from this?” In typical fashion, I had to pause and think about the answer. But not for too long.
I don’t recall the exact words that I said, but the lesson that I am learning from this—the silver lining in this cloud—is the importance and meaning of relationships. Relationships that, perhaps, I had taken for granted or didn’t really fully understand how deep they are.
You have amazed and humbled me with your offers of support, kind thoughts, and prayers over these last two weeks. Heck, I never expected this blog to garner much interest, but we’re approaching 500 visits since I launched this on Sunday, 14 November. That’s almost 50 hits a day! So that tells me that my relationships are much stronger than I may have thought they were. That, or there’s nothing on TV and you have nothing better to do than read these ramblings… J
With a little bit of luck and a lot of cooperative weather, I’ll be spending tomorrow, Thanksgiving Day, with my sister, her family, and a cousin, and I’ll raise a glass to everyone who’s been by my side through this latest chapter in my life. Your support has been my biggest ally in getting me through this. So all I can say is…
Thanks much! Vielen Dank! Muchos gracias! Merci beaucoup! ありがとうございます。! Mahalo!
Oh.
And Happy Thanksgiving!!

Day 13 – Reflection

Today was a good day at work, but having to call the surgeon’s office at lunch put me in a reflective mood.
First, I called the surgeon in Cincinnati that I have the appointment with on December 9th. They sent me some paperwork to fill out in advance of the office visit, and they also asked me to call to go through my medical history.
For nearly 15 minutes, I’m answering questions about my background and that of my family. I guess they need to be thorough in advance of a major surgery, but some of the questions seemed completely unrelated to my cancer.
I tried calling the surgeon in Indy again, this time using the correct phone number. When I got through the endless automated menu, I got a voicemail message telling me that she was out of the office for the rest of the afternoon and to call back tomorrow. Frustrating.
I’m beginning to doubt the need to speak to two surgeons and to do my “comparison shopping.” Will it really make a difference? I don’t know. It’s a leap of faith no matter which one I select. Is it really worth the hassle and additional waiting to try to get in to see another surgeon?
Ultimately, the prudent side of me will probably go through with talking to both. It’s just something that I wish was done and the surgery was scheduled.
So those thoughts had a little cloud hovering over me on what otherwise was a great day.

Day 12 – Routine

I’m not sure what happened last night, but I was back to tossing and turning for some reason. I looked at the clock: 1:33 AM. Then again: 3:40 AM. Hopefully there won’t be a repeat tonight.
Today was a great day at work. I was very focused for the first time in a long time. The thoughts of cancer remain ever-present, but now they’re not predominating every moment as they were a week ago.
I did, however, take some time over lunch to hop onto our health insurance provider’s website to check to see if the surgeons being recommended to me are part of our plan. They are. That’s always a good thing.
I tried contacting the surgeon who operated on our VP (the coworker I spoke with on Friday) but only got the squealing of a fax modem. I’ll have to find his right phone number and try again.
Last Friday, I was speaking to a different coworker and learned that his father had had prostate cancer and underwent a robotic radical prostatectomy several years earlier. He offered to ask his father who his surgeon was, and I found out today that it was the same surgeon that my urologist recommended. The outcome was successful. My coworker’s father offered to talk to me about it if I want, and I will probably take him up on his offer soon.
I need to prepare a list of questions for the surgeon (and my coworker’s father), just as I did for the visit to the urologist. For me, it really helps to have them written down because I’ll likely forget one or two if the conversation goes off on a tangent.
Another reason today was such a great day was the weather. It’s a balmy 70 degrees at 7:30 PM which is highly unusually for this time of year. Rather than drive home for lunch, I walked the mile to my house, enjoying the warm southerly breeze along the way.
Right after work, I drove to Jungle Jim’s Market in Cincinnati to pick up some landjägers (German salami sticks) for Thanksgiving with my sister and her family. (Didn’t you know… There were a couple of Germans that came over on the Mayflower in 1620!!) It’s kind of a family tradition for the holidays…
Well, time to pay the next medical bill that arrived in the mail today…