Day 5 – Books, Scans, & Calls

Bad idea.

“100 Questions and Answers about Prostate Cancer” is not a good bedtime read. I made through Question 57 and had to put the book down (mainly because it was 11:45 PM).
Most of the material that I read I had seen in my previous research. But there was one particular section that made me feel as though I was reading a Stephen King novel by candlelight in a creaky old house.
Tables 6 and 7 in the book talked about the likelihood of the cancer spreading outside of the prostate (Table 6) or to the lymph nodes (Table 7) based on your PSA score, your Gleason score, and your tumor staging designation.
Based on the descriptions in the book, I think my tumor would be a T2a or T2b. Combine that with my PSA (5) and my Gleason score (6), and there’s a 66% chance that the cancer is confined to the prostate for a T2a tumor and a 44% chance that it’s confined to the prostate for a T2b tumor. For the likelihood that it’s spread to the lymph nodes, it’s 4% and 11%, respectively.
I’ll definitely ask my doctor to confirm my interpretation of the tables when I see him on Thursday and ask him about the study and its legitimacy.
Needless to say, that little tidbit kept me tossing and turning a good chunk of the night, and I woke up this morning with a pit in my stomach and scared about the likelihood that the cancer has spread. Not a good start to the day that I had a bone scan scheduled.
The bone scan was a piece of cake. I went in at 10 AM to get injected with my radioactive juice, and went back at 1 PM for the actual scan. I just had to lie on the table and keep still for 30 minutes. She had to scan my melon-sized noggin twice; apparently the first image wasn’t satisfactory. (No comments about the content or lack thereof, please!)
On my way out, I asked her if she saw anything that would indicate further testing might be required. She told me the doctor would go over the results with me on Thursday, but that I shouldn’t get too worked up before then. I guess that’s a positive sign, but I’ll withhold setting expectations for now.
Just days before my biopsy, I received a jury duty questionnaire from the Ripley County Court. It was just what I needed on top of everything else that was going on. My doctor wrote a note that I can send in with the survey in an effort to get me out of serving. We’ll see if it works.
When I returned home, I found a message on my answering machine from my urologist’s office. She wanted me to call a surgeon that my urologist recommended to set up an appointment to review my case. He was one of three that my urologist had recommended during that initial meeting on Day 1.
That threw me for a loop. I’m not ready to start talking to surgeons yet.
You know me. I wanted to take time to research all three of them to see what I found about their backgrounds, training, number of procedures performed, and complication rates. I also was under the impression that we’d wait for the results of my bone scan and colonoscopy before we started talking specific treatment options. I guess I’ll have to accelerate that research now.
It also makes me wonder if there’s a greater sense of urgency here than I was originally led to believe. Or, perhaps, it’s just that to get on this guy’s calendar, you have to book months in advance. Either way, I’m feeling pressured to take the next step, perhaps prematurely. I’ll talk to my urologist on Thursday to get the real scoop.
So I started the day anxious, had a bright middle of the day, and ended it feeling pressured and confused. I’m not sure you’ll find “100 Questions and Answers about Prostate Cancer” on my nightstand tonight.

Day 4 – Relax and Reflect

Sunday.  A day of relaxation.  And that’s what today was—for the most part.
A good chunk of the morning was spent getting this blog up and running.  It’s my first ever, so I had to figure out the technical mechanics of making it work.  That was a good mental distraction even though the content of the blog centers on my cancer.
Other than that, there were the few odd chores that needed to be done around the house—picking up, watering plants, a load of laundry or two, a run to Kroger to buy some groceries, and a stop by the post office to pay what will be the first of many healthcare bills.
So how am I doing?  Really.
I never really asked the question, “Why me?”  It has no answer other than the statistics show that one in six men in the U.S. will get prostate cancer.  I never really asked, “How did this happen?”  Researchers much smarter than me are still trying to figure that out. 
And while there was some anger between the initial discovery and the diagnosis, I quickly learned that harboring such anger was a destructive waste of time and energy (plus a few people I interact with wanted to slap me silly because I was so cranky).  That doesn’t mean that it’s gone away entirely; I think I just handle it a bit better now.
So I’m not sitting here in the dark going, “Boo-hoo, woe is me.”  I have cancer.  It’s not what I would have chosen for myself, but it’s what I’ve been dealt.  I can’t change that fact. Now it’s time to deal with it.
Of course, we’re still trying to define “it.”  Tomorrow I go for my bone scan to ensure that it hasn’t metastasized and spread beyond the prostate.  They’ll squirt some radioactive juice in my veins in the morning; I go back in the afternoon for the actual scan; and I’ll glow in the dark in the evening.  (Okay, I’m making that last part up.  I think.)
The radioactive material will form “hot spots” that show up on the scan where there are problem areas.  Unfortunately, it will settle in areas of cancer as well as areas of arthritis.  So if any hot spots do show up, I anticipate there may be even further tests needed to determine if they’re arthritis or cancerous.  With more testing comes more waiting.
My appointment to learn the bone scan results is on Thursday, 18 November.
Finally, my free gift from the doctor, “100 Questions and Answers about Prostate Cancer,” has been sitting on the kitchen counter since I put it there Thursday morning on returning from his office.  It may be time that I pick that up and start reading it.

Day 3 – Escape

“Okay, so what’s up with the little ball of sunshine?” you ask. I thought it might be a quick and wacky way of indicating what kind of day it’s been for me emotionally. A sunny day = a good day; an overcast day = a crappy day. You get the idea…


Up early on a Saturday?? Moi??? Yes. A decent night’s sleep had me rolling out of bed around 6:30 AM. Determined not to even think about cancer today (okay, not think about it much!), I decided that I would do what I do best: Hop in my car and drive.

A friend at work rock climbs in the Red River Gorge of the Daniel Boone National Forest in Kentucky, and he suggested that I check it out. It’s about a three hour drive from here, so I found myself driving down the highway about 8 AM on an unusually warm (72 degrees) and sunny mid-November day.

The act of driving the twisting roads of the scenic byway and the search for photogenic sights kept my mind off of other matters. It was a pleasant way to spend the day.

On the way back through Cincinnati, I stopped at Jungle Jim’s market and picked up a bottle of wine and a hunk of Papillon Roquefort–not to drown my sorrows but to celebrate the day.

Cliches are cliches because there’s an element of truth to them. In an odd way, being diagnosed with cancer has made me feel more energized. Perhaps I’m beginning to follow Tim McGraw’s advice, “Live Like You Were Dying,” or even my own mom’s admonition that, “Life is not a dress rehearsal.” (Don’t take that as my believing the Grim Reaper is right around the corner–prostate cancer is highly treatable and curable, and that’s what I’m focusing on.)

I’m sure that I’ll have my down days–next week will be filled with a few of them as I wait for the bone scan results. So look for a few clouds on the horizon as I take the next step in my journey…

Day 2 – Adjusting

So I woke up Friday morning much better rested than the previous night. That doesn’t mean that I had a full night’s sleep; just a more restful one.

One of the things that kept me tossing and turning was the upcoming bone scan test. If that shows the cancer has spread, that’s a whole new ball game that we’re dealing with. That had me on edge very early in the morning.

I went to work and quickly sought out a couple of friends whom I didn’t have the opportunity to tell on Thursday. Nothing like starting the day with:

“Good morning, how are you?”

“Okay. I have prostate cancer.”

Unfortunately, there really is no delicate way to tell someone that you have cancer. You just have to come out and say it.

I found it interesting that I really felt compelled Thursday afternoon and Friday to spread the word. Perhaps it was simply because of my own discomfort with uttering the words, “I have cancer.” As with anything, however, repetition did make it easier.

By mid-morning, I had made the last of my intended announcements and then turned my attention on the bone scan, learning the timing of its results, and scheduling a meeting with the doctor to review the results.

Oh. And I did some work, too.

By late morning, I was in a pretty good mood and more focused on what I needed to do for my job. (I still wasn’t completely focused on my job–just more focused.) I was able to convince myself not to dwell on the results of a test that hadn’t even been run yet. We’ll cross that bridge when we come to it.

At the end of the day, I was in a really upbeat mood and decided to head to Cincinnati for dinner and a little shopping. I was in bed with lights out by 10:30 PM.

Day 1 – The News

“Go ahead, Doc, make my day.”

“Well, I’m afraid it’s not good news.”

So that’s how I learned that I have prostate cancer.

My urologist went through a pretty detailed description of what I needed to know.    He took twenty samples during the biopsy the week before, and was surprised by how many returned with cancerous cells.  Most of the cancer was found on the right side of the prostate where the mass was, but some was found in the left side.

With a Gleason score of 6 and a PSA of 5, he classified the cancer as slow growing and thought that it was confined to the prostate for now.  I questioned the Gleason score of 6, considering that 10 is the max on the scale, indicating the most aggressive cancers.  He said that the scale isn’t linear, and anything below a 7 is still less aggressive.

He was pretty confident that the cancer was contained within my prostate and had not spread, yet when I told him about some discomfort in my hip (one of the reasons for having the physical in the first place), he ordered a bone scan to ensure that the cancer hasn’t spread outside of the prostate.

His recommendation for someone of my age (52) in my situation is to have a robotic radical prostatectomy.  He offered up several physicians in the Cincinnati area who do “hundreds” of these procedures each year for my consideration.  I have time to make the decision.  We also talked about the possible side effects of such a surgery.

I had an inkling that this would be the outcome.  I’m not sure why.  I just did.  So I’ve had a month to wrap my head around the possibility.  Still, it’s not the same as when the doctor says, “You have cancer.”  My sister wasn’t expecting that answer and was quite shaken by the news.

As we left, the doctor handed me a book, “100 Questions and Answers about Prostate Cancer”–a $16.95 value (unless it shows up on my Anthem claim statement).  He did comment on how thorough my online research had been.  “Knowledge is power,” he said.  And scary, too.

After leaving the doctor’s office, we came back to my house to discuss the meeting and review my sister’s notes (she was the extra set of ears and recorder–something I appreciated).  After half an hour or so, they decided it was time for them to head back to Chicago, and I was okay with that.

It was around 10:00 AM when they left, and I waffled on whether or not I should go back to work.  Within 15 minutes, I was in my car heading to the office.  I needed to let some close friends and coworkers know the outcome–they had been waiting anxiously for the results.  Besides, moping around the house wasn’t going to do me any good, either.

I had let a handful of people know what I was going through but asked them to keep it quiet for the time being.  I let those folks know the results first, and each was stunned.  I told my boss that I’d been debating whether to make a public announcement to our team about it.  I live and work in Small Town USA where the gossip mill is alive and well, and I wanted to control how the message was delivered, especially to those I work with on a daily basis.

My boss was understanding and allowed me a few minutes at the end of our staff meeting.  I opened by saying that a few of them had approached me about being distracted or on edge the last few weeks, and that I had a reason for that.  I would also probably be distracted and on edge for the next few weeks as well.  All were shocked speechless at the news (or, perhaps, at the fact that I was sharing it in such an open way).

By the end of the day, I was physically and emotionally spent.  I had barely slept the night before (thanks to a neighbor’s barking dog–or perhaps a coyote), and was in my bed, lights out by 10 PM.

"Bend over and spread your cheeks."

I went for a routine physical on October 7th and my doctor performed the dreaded digital rectal exam (DRE) as part of the process.  When she felt a firm mass on my prostate, she made sure that the blood drawn the previous day would also have a PSA test run on it.  The results on the PSA were elevated (5) and my doctor hooked me up with the local urologist for further screening.

On October 21st, the urologist needed to perform his own DRE and confirmed what my personal physician had detected: a mass on the right side of my prostate.  A trans-rectal ultrasound biopsy was ordered and took place on November 3rd.

Twenty tissue samples and a week later, the pathology report was in.  The appointment for the results was at 8:45 AM on Thursday, November 11, 2010.

My sister and her husband would drive from their home in Chicago Wednesday night to spend the evening with me and offer moral support the next morning as the results were being delivered.