Tag: Cancer Awareness

Fifteen Years

On By DanIn Prostate Cancer6 Comments

It’s been fifteen years since I was told those three little life-altering words on 11 November 2010: You have cancer.

The good news is that I’m still here and able to write about it. The bad news is that I’m still writing about it. (I want a refund.)

Fifteen years of being poked and prodded. Fifteen years of being scanned and zapped. Fifteen years of riding an emotional roller coaster waiting for the next test or scan result. Fifteen years of researching far more than I ever imagined researching. Fifteen years of making decisions that impact the quality and quantity of my life, and hoping they were the right choices.

In other words, fifteen years of fun. <sarcasm font>

On the positive side, it’s fifteen years of getting to know how strong I can be. It’s fifteen years of adapting to new circumstances and making the best of them. It’s fifteen years of learning to not look back and question decisions already made. It’s fifteen years of forming new relationships with those in the same boat. Most important, it’s fifteen years of waking up every morning and starting a new day when so many others with this disease didn’t get that option.

And, because I valued others with prostate cancer sharing their experiences, it’s fifteen years of telling my story via a silly little blog that I had no idea would keep going for this long. Mind-blowing. Helping others by sharing my story was my way of making lemonade out of lemons.

In three weeks I’ll have my next PSA test. Hopefully, with the follow-up appointment on 30 December, we can map out the next steps to keep me around for another fifteen years.

Finally, sincere thanks to every one who has supported me over the last fifteen years. I appreciate it more than you know.

Be well.

Header image: Milford Sound, New Zealand

Treating Lymph Node #ProstateCancer Metastases | MarkScholzMD

On By DanIn Prostate CancerLeave a comment

Here’s another timely (for me) and educational video from Dr. Scholz and the Prostate Cancer Research Institute.

I have an appointment with the medical oncologist on 19 March, and this has given me a good foundation for the discussion.

Month 127 – PSA Results

On By DanIn Prostate Cancer, Recurrence13 Comments

I went for my originally scheduled six-month PSA test last Thursday and was able to look online last night to see the disconcerting results: A substantial increase to 0.21 ng/ml.

Breaking the 0.2 ng/ml threshold now officially puts me into the biochemical recurrence category, at least according to the long-held definition of biochemical recurrence.

Needless to say, I felt gut-punched on seeing the results. Sure, I’ve know for over five years that my trend has been upward, but I guess I got comfortable with it bouncing around the 0.10 to 0.16 range for the last few years. I wasn’t expecting such a substantial leap between my “surprise” PSA test in February and this one in June.

When it comes to PSA doubling time, it dropped from 67.7 months to 52.8 months with this latest test result included in the calculations. If I look at only the five most recent test results, the PSA doubling time drops to 46.5 months. Of course, all of those are great numbers that a lot of guys would like to have.

My appointment with the doctor isn’t until 6 July, and it will be an interesting conversation now that we’ve crossed that magical line of 0.2 ng/ml. In a way, I’m glad I’ve got several weeks to think this through and to come up with good questions to ask so that I’m prepared for the appointment.

Of course, salvage radiation therapy just moved to the top of the list of things to talk about. It will be interesting to see if their recommendation changes given the 0.21 number versus the long PSA doubling time.

Needless to say, there’s going to be much reflection and research in the weeks ahead.

September is Prostate Cancer Awareness Month

On By DanIn Prostate Cancer4 Comments

September is National Prostate Cancer Awareness Month, reminding us that one in seven men will be affected by prostate cancer in their lifetimes. It’s also a good reminder to take a few moments to learn more about the disease, the ongoing debate concerning screening for prostate cancer, its symptoms (or lack thereof), and the myriad of treatment options should you happen to be that one in seven.

There are plenty of resources out there from which you can learn. Schedule an appointment with your physician and have an open, honest discussion about your risks and whether or not you should be screened. In the end, it’s important to remember: It’s your body, your choice.

Please share this important reminder with the men in your life.

Six Years

On By DanIn Prostate Cancer2 Comments

Six years ago today, I was told I had prostate cancer. Guess what? It’s six years later and I’m still alive and kickin’. Woo-hoo!

PSA Trend 20160803Of course, the cancer storm clouds may be brewing as I head into my next PSA test in a few weeks. Who knows what crazy result it will yield. Remember, in the last 15 months, we’ve gone from undetectable to 0.05 to 0.04 to 0.08 to 0.05. Any bets on the results this time around??

My schedule in early December is quite hectic, so I’ll likely go for the blood draw during the week of 28 November. As usual, I’ll wait three days to get the results online, and then my appointment with the urologist is on 29 December.

Stay tuned. In the meantime, here’s wishing everyone a Happy Thanksgiving with family and friends!

Month 70 – Sharing Awareness

On By DanIn Prostate Cancer4 Comments

We’re about half-way through Prostate Cancer Awareness Month and it seems as there’s been some progress in getting the word out. More organizations seem to be helping to increase awareness than in the past, and that’s a good thing.

I’ll have to admit that my own approach to PCAM has changed slightly. I’m more inclined to tell people to educate themselves before making the decision to test.

Those of us who have been dealing with prostate cancer understand how complex, convoluted, conflicting, and confusing it can be. If you’ve never entertained the notion that you can get prostate cancer, you probably haven’t paid much attention to the raging debates in the field. DRE or no DRE? PSA test or no PSA test? Over-treatment versus under-treatment? Active surveillance versus treatment? That’s why it’s so important to educate yourself before being tested.

One of my former managers always said, “If you can’t stand the answer, don’t ask the question.” Your decision to get screened for prostate cancer is exactly that: your decision. You have to be comfortable with either path you take, and the best way to make that decision is by being educated. Please take a few moments this month—Prostate Cancer Awareness Month—to learn more about prostate cancer and how it can affect you. You can start with my Resources page.

I finally made my family and friends aware of my detectable PSA shortly after my visit with my urologist in August. There was concern from those who responded but, on the whole, the reaction was good. I knew that sitting on this for a year would cause some deserved criticism, too, but they seemed to understand my rationale.

It’s a relief to have it out in the open now. As one of my readers wrote on his own blog, “A burden shared is a burden halved.” Yep. It is. (Sorry, I can’t find the quote again to give credit where credit is due!)

On the whole, I’ve been able to push aside the emotions and thoughts that the cancer may be returning, and it feels good to be reengaged in the world. The next PSA test is in December.

Now if I can just get used to the fact that it’s dark when my alarm goes off in the morning… It wasn’t that long ago that the sun shining through my east-facing bedroom window woke me up and not the alarm. Autumn and shorter days are here! (In San Diego, shorter days are about the only indicator of it being autumn.)

Day 1,773 – Waiting Sucks

On By DanIn Emotional Aspects, Prostate Cancer, RecurrenceLeave a comment

As you can tell from the title of this post, it’s going to be a long three months.

This morning, my mind was filled with thoughts of prostate cancer and it took considerable effort to get focused on the task at hand at work, but I eventually succeeded.  Some of the thoughts centered on the fear of the unknown and the long wait to get to the known, and others were more administrative in nature regarding this blog.

Sometimes I think pulling the plug on this blog would be just what the doctor ordered. By maintaining it, it forces prostate cancer to be in the forefront of my mind at least monthly.  But I also know that by not maintaining it, that isn’t going to make my current predicament go away, so I may as well blog about it.  I’ve learned things from others in the process of doing this, and I know that sharing my experience has helped at least a handful of people along the way.  Besides, when you’ve been doing something religiously for almost five years, it’s a tough habit to break.

Of course, it being Prostate Cancer Awareness Month keeps the topic in my news feeds, too, and I feel compelled to work to increase awareness, so I guess I’ll just keep reading the stories.

On the bright side of this, the initial panic and fear have subsided.  I’m down to rational thought on what I should be doing or researching next.

Okay.  It’s late. I’m rambling.  Thanks for letting me think aloud. I’ll get this under control and will work on my patience…  Really.

prostate-cancer-awareness-hero-806x307,0

Prostate Cancer Awareness Month

On By DanIn Prostate Cancer1 Comment

prostate-cancer-awareness-hero-806x307,0
Image from cityofhope.org

It’s September and that means it’s Prostate Cancer Awareness Month. One in seven men will develop prostate cancer in their lives.

Please take time this month to understand and learn more about prostate cancer and to spread the word.  Awareness saves lives.

If you haven’t been checked recently (or ever), make an appointment with your doctor.  It was a screening during a long-overdue physical exam that caught my cancer, and here I am 4 years, 9 months, and 21 days since my diagnosis, still alive and advocating for prostate health.

The Prostate Cancer Foundation offers a great overview for those wanting to learn more.  Check it out here.

On a related note, I go for my next PSA test this week.  Results to follow in my next regularly scheduled post if I have them by then.

 

Month 46 – Views on Cancer Awareness

On By DanIn Prostate CancerLeave a comment

Okay.  Buckle up.  I’m climbing on my annual cancer awareness soap box.

Seeing pink on the the Chula Vista Fire Department’s Facebook page today made me see red.

I want to see powder blue.  Especially in September.

Why CVFD would post this during National Prostate Cancer Awareness Month is a bit perplexing.  (Actually, not really.  They just want to get a jump start on fundraising with October being Breast Cancer Awareness Month.)

One in seven of those male firefighters will face prostate cancer, and they apparently choose not to acknowledge it; they choose not to spread awareness; and they choose not to fight something that can directly impact themselves.

Why?

I’m not a marketing guru by any stretch of the imagination, but the Susan G. Komen Foundation certainly has turned its cause into an empire through effective and ubiquitous marketing.  Everywhere you turn, there’s a freakin’ pink something-or-other reminding you of the scourge of breast cancer and the need to cure it.  Hell, watch an NFL game next month and you’ll see 300-pound linebackers wearing pink shoes.

Don’t get me wrong. I’m not downplaying breast cancer at all, nor am I condemning the Susan G. Komen Foundation’s success.  In fact, just the opposite.  Prostate cancer awareness teams have to take a page from the Foundation’s marketing playbook.  But it may be more than a marketing issue.

Is there a stigma associated with prostate cancer that prevents people–men–from talking about it?

If so, how do we eradicate the stigma so that we can eradicate the disease?  How do we get men to realize that it’s not only okay to talk about prostate health, but we should go out of our way to talk about it.  There’s nothing embarrassing about it.

Do we show them stories like this reporting the death from prostate cancer of San Diego’s Bishop Cirilo Flores, who was diagnosed in April and died in September?

http://www.utsandiego.com/news/2014/sep/06/diocese-bishop-flores-death-catholic/

It’s not all doom and gloom.  The Prostate Cancer Foundation and others like the Safeway Foundation have been more visible with their efforts to increase awareness, even since I was diagnosed almost four years ago.  That’s good.  But we need more.  Much more.

And this little blog with its almost 15,000 clicks isn’t going to change the world of prostate cancer awareness by itself.  (Although I will keep tilting at that windmill…)

Time to climb down off my soap box.  Thanks for letting me vent.

Manhood for Good
Finally, lest you think I’m bashing our firefighters, especially today, I’m not.  I have a tremendous amount of respect for what our first responders do, day in, and day out.
Remembering 9/11

September is Prostate Cancer Awareness Month

On By DanIn Prostate CancerLeave a comment

September is Prostate Cancer Awareness Month, and even thought there’s been a lot in the news lately about changes in screening and treatment options, it’s still critical that men educate themselves about prostate cancer.

I had no clue that I would be introducing “cancer” into my vocabulary nearly four years ago, but I did.

It happened after a digital rectal exam during a routine physical that I had put off for a couple of years.  That day changed my life and was the beginning of this journey.

Please take time in September to talk to the men in your lives about this important issue, and ask them to learn a little more about it.